KING OF PRUSSIA, Pa., March 12, 2021 /PRNewswire/ — The Affiliation for Frontotemporal Degeneration (AFTD) is grateful to announce the creation of The Donald and Susan Newhouse Fund at AFTD. The Fund has been launched by a beneficiant $20 million donation from AFTD donor and passionate volunteer Donald E. Newhouse.
Mr. Newhouse’s $20MM present, the most important single donation in AFTD’s practically two-decade historical past, will speed up and deepen the group’s work throughout our mission areas of analysis, assist, training, consciousness, and advocacy. The present is unrestricted, and shall be allotted after planning by Board and workers.
AFTD was launched in 2002 when a single volunteer and donor, Helen-Ann Comstock, dedicated $1,000 of her private funds and gathered others who had confronted a journey with frontotemporal degeneration (FTD). At the moment, AFTD is the main group devoted to enhancing the lives of individuals and households affected by FTD – the commonest type of dementia below 60 – and driving analysis for a remedy.
“To face an FTD journey is to fervently want that nobody ought to ever face one once more,” stated AFTD Board Chair David Pfeifer. “Don’s beneficiant present displays the urgency of a neighborhood of hundreds of donors and volunteers unwilling to simply accept the basic lack of remedies for FTD as we speak.”
“My spouse Sue and my brother Si suffered from dementias which have been variants of frontotemporal degeneration,” stated Donald Newhouse. “As my Suzy would have needed, I’ve dedicated myself to do what I can, in order that others don’t endure as she did. AFTD proved to be the best car for finishing up my dedication, and my collaboration with this group is a labor of affection.”
The institution of The Donald and Susan Newhouse Fund empowers AFTD’s Board and workers to deepen and broaden the imaginative and prescient of our present strategic plan. The plan seeks to:
- Advance early and correct analysis and the event of remedies.
- Advance high quality care and assist.
- Strengthen and broaden AFTD’s place because the main authority on FTD.
- Construct and strengthen the group for long-term success.
Since 2016, AFTD has expanded its staffing and its influence considerably, by engagement from hundreds of particular person donors, alongside company sponsors and basis assist. The newly introduced Donald and Susan Newhouse Fund amplifies and builds on assist supplied by the David Geffen Fund at AFTD, our annual Hope Rising Profit, and commitments from hundreds of donors and volunteers who lead a variety of grassroots occasions throughout the nation.
“Don’s present gives important momentum as AFTD prepares for our subsequent strategic planning course of, to start this summer season,” stated AFTD CEO Susan L-J Dickinson, MSGC. “We’re grateful for his willpower, imaginative and prescient, and partnership,” she added. “Throughout a difficult time for the households we serve, this present sends a robust message: By working collectively, we will finish this illness. We’re deeply grateful for the assist of the Newhouse household, and of all who select to work with us in searching for a world with compassionate care, efficient assist, and a future freed from FTD.”
About FTD: FTD brings progressive modifications in conduct, character, language, and/or motion. At the moment, there are not any disease-modifying remedies, and there’s no option to stop or remedy this illness. On common, even receiving an correct analysis takes 3.6 years. Advancing analysis into FTD is prone to have profit for ALS, Alzheimer’s, and different types of neurodegenerative illness, and we welcome partnership and assist from others seeking to making a distinction within the lives of the greater than 60,000 within the U.S. alone who’re affected by FTD.
SOURCE The Affiliation for Frontotemporal Degeneration