Sufferers cared for at dwelling and their households have totally different wants. Crucial of those wants are to have the ability to entry correct details about affected person care and to learn from the social alternatives offered by the state. As a way to attain the proper details about affected person care, to start with, it’s obligatory to achieve the proper sources of data.
As a way to profit from the social alternatives offered by the state, the altering laws of well being establishments ought to be adopted intently. Discovering the precise sources with the precise data has develop into a little bit of a “job of luck” these days. Having the ability to comply with the ever-changing laws and adapt to improvements creates an issue for each service suppliers and repair customers. The enhancements tried to be made within the well being system are good and promising, however inadequate. So why is it inadequate? In reality, the reply will be given with out a lot issue. Maybe the wants and complaints will not be communicated to the related establishments and organizations collectively. Contemplating the present circumstances, we ask you to share your issues and ideas with us. By including your messages to this web page, we will accumulate all complaints at one level and thus entice the eye of the authorities. You can too view earlier messages on this web page.
Folks proceed to share their needs and issues with one another on many alternative platforms. Some issues will be solved both by the household’s personal strategies or by way of state establishments. Thus, it’s attainable to fulfill a number of the wants, however it is rather tough to discover a answer if it isn’t recognized the place to use as a consequence of lack of understanding. It’s helpful to get concepts and be taught from individuals who have comparable issues. Thus, we each really feel that we’re not alone and we will attain an answer quicker.
Whereas coping with the well being issues of our sufferers, we additionally attempt to make our voices heard by means of many social media platforms on the web corresponding to Whatsapp, Fb, Twitter and Change.org. We additionally apply to the related authorities establishments individually with petitions (more often than not we don’t even do that, sadly). When these efforts are fragmented, we can not produce the impact we wish. We can not absolutely convey our must their counterparts and we can not discover a answer.
As everyone knows, “He is aware of the state of what falls from the roof and falls from the roof.” There’s a proverb referred to as. In brief, households who’re in the identical scenario can actually perceive the issues of households caring for his or her sufferers at dwelling. Maybe the problems we complain about will not be perceived as an issue by those that can resolve them. The issue we’re experiencing may have an answer that we have no idea.
If we will share and talk about our requests, wants, complaints and issues in a single level and listing them clearly, we will attain the mandatory data extra simply. It can even be a spot we will confer with for our purposes. On this manner, the that means and impact of the notice we are going to create will increase.
Messages You Share With Us
22.03.2017 – CEVDET MELANKO – I handle my father. He must be fed properly. Nevertheless, I should not have the monetary scenario for this. We obtain pharmaceutical aids. At the very least we do not have the cash we pay for medication. However they are saying a superb vitamin program ought to be applied for the affected person. They do not clarify how this may occur. The state also needs to present this sort of help. At the very least, we wish dietary help for sufferers for whom vitamin is essential. It is like a drug complement. Crucial. Generally vitamin turns into extra essential than remedy. In such a case, drug help ought to be used as dietary help. We count on extra versatile options. It must be fed properly, but when we won’t afford it, how?
29.03.2017 – RAZİYE DAMLA ONAN – Our affected person is bedridden for years and can’t transfer anyplace. They’ve reviews legitimate for 2 years. When the report expires, we can not purchase medicines and medical merchandise as a result of the report must be renewed. The physician needs to see our affected person, who has not been capable of transfer for years, in every report renewal course of. We name a non-public ambulance, take the affected person to the hospital with lots of issues, then deliver him again dwelling. This drawback must be resolved. Cash not lasts. I used to be determined.
01.05.2017 – DENİZ YAZICI – I take care of my sick father at dwelling. Medical help offered by municipalities and different well being establishments is sweet. There’s lots of assist with help corresponding to physicians and nurses. Most medication are simple to search out, however some are nonetheless not obtainable. There are some issues which are essential when caring for the affected person at dwelling, from good vitamin of the affected person to the house surroundings in response to affected person wants. Every kind of medical help is on the market at dwelling. However is not the house surroundings additionally essential for the sick? Slips, falls and accidents can nonetheless happen. It may be detached to the affected person. Because of this, it’s crucial that one of many rooms in the home is constructed to fulfill all of the wants of the affected person. We count on a examine on this route. There are numerous sufferers who want this, and those that should handle sufferers at dwelling. I wish to handle my father in additional ergonomic circumstances. He wants a correct bathroom, mattress, and a room during which he feels peaceable. Monetary help is required for this. It’s not attainable to design such a room for somebody with a minimal wage. I am ready for assist. Nonetheless, I thank the state. I would like healthcare to be higher.
13.05.2017 – ŞAKİR VEFALI – Most of these dwelling at dwelling are working. There’s all the time a necessity for somebody to stick with my sick mom. For this, we wish help corresponding to nurses or caregivers. Once I depart the home to work, I ask the neighbors to take a look at them hourly. However how far. Generally this does not occur both. Each from time to time we beg family members. However everybody has a job in spite of everything. Caregivers ought to help us at the very least when we’re not at dwelling. For this, you want materials. This isn’t one thing that everybody has. We would like help from the state for this. It’s mentioned that there’s a lot of help, however we have no idea methods to benefit from them. I watch the information so much, however I have not heard of it but. I do not assume there may be caregiver help. There are solely docs and nurses who come and go dwelling. These are one thing totally different. The caregiver must handle the affected person throughout working hours when we’re not dwelling.
03.06.2017 – ERCAN AKSUN – Institutional funds for medical merchandise have been the identical for years. Product costs are too excessive. SUT must be modified now.
17.06.2017 – KAZIM BOZ – Psychological help can be wanted. Along with doctor and nurse help, psychological help can be wanted. I believe this is likely one of the most essential helps for sufferers at dwelling. As a result of he can see himself as redundant and thinks they’re essentially involved with the care of these round him. It is extremely pure for such ideas to happen, particularly as a result of perspective of younger individuals in direction of the aged. The aged are extremely delicate, and people with power illnesses have a way more delicate nature. Psychological help is required for these. Doctor and nurse help is just not sufficient. That is within the laws on dwelling affected person care, however since there may be not sufficient employees in each hospital, solely docs and nurses can be found for affected person visits at dwelling. Psychologists must attend such visits and the go to intervals ought to be frequent. Everybody is aware of how essential morale is for sick individuals. There’s a nice want for psychology specialists to determine communication that can enhance the morale of the sufferers. When their morale is sweet, the morale of those that handle the sick at dwelling will be good. Constructive vitality could make them extra comfy.
01.07.2017 – SEDEF ÖZAY – We run out of cash and endurance. I can’t stand.
14.07.2017 – MAZLUM GENEL – Affected person mattress is likely one of the most essential units for sufferers cared for at dwelling, however SGK doesn’t pay for this product. Relying on the wants of the affected person, a mattress with 2, 3 or 4 motors ought to be given freed from cost.
25.08.2017 – SELAMİ ALTIN - We can not take the affected person round, he wants air however we should not have time. If you’re nursing at dwelling and must work on the identical time, issues are very tough for you. You probably have work life, family chores and a affected person it’s good to handle, life turns into very tough. My sick father must be taken round. Nevertheless, there isn’t any one at dwelling who can do that. Everyone seems to be working. We can not hold a caregiver both. My father’s ft will not be good both. Conditions corresponding to being taken out or taken out of the constructing should be performed fastidiously. A program ought to be applied for the sufferers to stroll round and socialize. This may give them a fairly good morale.
28.08.2017 – LEYLA İPEK – I’ve to work and on the identical time I handle my sick mom. Ladies are essentially the most tough to look after at dwelling. As a result of on this regard, males keep away from taking an excessive amount of accountability. All the things is left to girls. Will you do the home tasks or will you handle your sick mom? When he tries to do it , the physique is left with out resistance. I additionally should work. If I give up the job, hire, upkeep prices, electrical energy, water, and the structure of the home shall be utterly tousled. Now a hand have to be made. A charge ought to be paid to those that look after sufferers at dwelling. It’s mentioned that there are such advantages, however how a lot will the cash be given for the dwelling of the home? To ensure that a girl to handle her affected person with out working at dwelling, she ought to get a superb wage and insurance coverage. In any other case, it isn’t attainable to cope with financial issues and to handle the affected person on the identical time. Ladies who handle the sick ought to be given more cash than the grandmother shall be given to take care of her grandchild.
14.09.2017 – MEHMET KAMİL – Helps are wanted to organize an ergonomic surroundings for the affected person. No one needs to depart their mother and father within the corners of the hospital. He takes care of himself at dwelling. That is in our household construction. Nevertheless, the house surroundings is just not good for the affected person’s well being. Not everyone seems to be wealthy in order that they rent a non-public nurse, make an ideal room. We ask for presidency help to make a room of sick houses appropriate for the affected person. Let the state come, there are sufferers at dwelling and so they want care. After that, an ergonomic mattress for a room the place the affected person is staying or no matter is required in a affected person’s room. Thus, each households and sufferers are comfy. The house surroundings has develop into safer for the affected person. Some homes do not even have rooms. Sufferers lie on the couch in the lounge. Bathrooms will not be appropriate both. Making a bathroom for the affected person ought to be among the many helps offered.
09.11.2017 – MUSTAFA TURAN ERGE – Now we have to pay lots of distinction when buying a product. Some merchandise don’t have any help in any respect. Now we have paid insurance coverage premiums for years. All the merchandise ought to be coated by the establishment.
19.11.2017 – ŞENOL MERTSOYLU – We left the hospital and got here dwelling, we had no details about methods to carry out aspiration. We didn’t know methods to substitute the tracheostomy cannula. The units had been always giving alarms. We had been about to go loopy. Sooner or later we had been capable of maintain on and took the affected person again to the hospital.
04.12.2017 – AHMET ERSAN – The surroundings of the home is just not wholesome for sick individuals. Homes shouldn’t be most popular for the care of sick girls. Many accidents occur. Furthermore, it is rather tough for somebody who doesn’t know to handle the sick individual. Improper purposes will be made. Medicines will be given incorrectly. Generally, hygiene will not be paid consideration to within the dwelling surroundings. Because of this the affected person is extra sick. There are those that know this job. They should care within the hospital. Nurses and docs go to houses the place sufferers are cared for by municipalities. Nevertheless, these are fairly inadequate and never applied by each municipality. We would like the authorities to do extra inspections and handle households who look after sufferers. Consequently, what must be performed is clear. Care at dwelling is just not simple. The state ought to make some examinations at dwelling. If the house surroundings is just not appropriate for affected person care, it’s obligatory to supply help for its association. In any other case, a scenario seems as if the sufferers’ life is endangered or ignored. Doctor and nurse visits to the home will not be sufficient. Extra is required. Designing the house for affected person care is a vital subject and we wish this to be addressed. Many individuals have already made a request on this route.
06.02.2018 – REYHAN AKKAYA – I’ve so much to jot down however I can not. I’ve no energy anymore. Everybody left. I’m the one one taking good care of my sick mom.
17.03.2018 – AYTUNÇ MİRAL – I’ve to cope with a number of ailments. Essentially the most tough conditions during which I’ve issue in nursing at dwelling are brought on by the truth that my sick mom has multiple power sickness. I’m not a health care provider, nor a nurse. Generally we’ve got issues as a consequence of malnutrition. I do not know what to do on this scenario. There are additionally issues with drug use. Nurse help ought to be given by the state. Nurse and physician controls ought to be extra frequent. They arrive from time to time, however they’re inadequate. Cellular groups that handle the affected person ought to be in each district. Cellular groups must journey always. What’s the scenario within the houses the place the affected person is cared for, whether or not there may be any progress in well being issues, they need to examine and report. It doesn’t matter what occurs after we ship it from the hospital, it isn’t true that it doesn’t concern us. There are additionally checks for exhibit. We cope with it day by day and there are occasions after we really feel anxious. In spite of everything, we’re not educated on this job. We ask cell groups to return for well being examine at the very least twice per week.
24.04.2018 – LEVENT ŞAHİN – Really, we will separate sufferers who’re cared for at dwelling in a number of methods. For instance, there are sufferers with power diseases who can meet their very own wants. Other than that, there are those that are sick and reside linked to units and transfer in a restricted manner. There are those that are sick and are utterly bedridden and use units. For instance, there are individuals who use wheelchairs that don’t maintain beneath the waist. It’s attainable to diversify as such. All of them have totally different wants. For instance, if the affected person lives in an condominium and there’s no elevator, it’s a massive drawback for the affected person to exit. Even when there may be an elevator, it is rather tough to get a totally bedridden individual out. A wheelchair consumer can solely be comfy in an condominium with an elevator and an acceptable ramp. Sturdy ramps have to be inbuilt accordance with the exit of the condominium buildings. An individual who will get out of the elevator with a wheelchair can get out of the condominium utilizing this ramp. As well as, this comfort ought to be offered in all public buildings. There are public areas that disabled individuals can nonetheless entry with issue. They’re afraid to go to locations like authorities places of work. If there are not any appropriate buildings, it is rather tough for a disabled individual to handle their work. It’s obligatory to concentrate to those. In spite of everything, disabled individuals are additionally residents of this state.
28.04.2018 – TUNCAY NİYAZ – Younger individuals are very detached and this case disturbs the sufferers. I look after sufferers at dwelling, however the younger individuals are very detached to their elders. This example causes malaise on the facet of the affected person. Somebody wants to clarify what outdated age means in school and why the aged ought to be handled with respect. Nevertheless, the brand new technology can not elevate its head from social media. They’re like narcosis. We are going to all develop outdated tomorrow. Nevertheless it looks like there shall be no technology that may maintain our fingers. There isn’t any such factor because the idea of household. What’s taught in faculties? We would like older individuals to be revered and liked. For this, trainings have to be given in faculties.
15.07.2018 – ALİ ÇİFTÇİ – Sadly, our authorities offers the mandatory help if there’s a grievance. I want the issues had been solved earlier than individuals rebelled.
27.09.2018 – SUAT BİRCAN – I’ve learn all of the messages. I sincerely agree. I unintentionally reached lots of details about the issues I’ve been experiencing for 3 months with my affected person. I’ve discovered by dwelling that the “falling off the roof”, as you name it, is left to their very own future. On this respect, you might be pioneering a really priceless service for us. We’re grateful to you. I want to state that I’m additionally glad with the merchandise and curiosity proven out of your establishment. I supply my respects.
16.12.2018 – BÜŞRA AYDIN - Good day. We’re in such a interval that some opportunists deceive by benefiting from the weaknesses and ignorance of sufferers, saying they have no idea anyway. So far as I can evaluate your web page, you concentrate on informing and serving to your sufferers. Congratulations, I want you a superb day.
28.02.2019 – KEMAİL BADRUK – Coughing system is just not obtainable out there. We’re in lots of hassle. It is a important system for my daughter however sadly we won’t get it.
11.03.2019 – BEHSAT ÇUHADAR – My spouse’s leg was amputated as a consequence of diabetes. They mentioned that regardless of having many different illnesses, you can’t get a report in want. I’ve been a sufferer for 5 months. I have no idea what to do.
02.04.2019 – MEHMET ÖZDEMİR – Good day. My mom handed away on the age of 79, my father handed away on the age of 83, they handed away on my lap in our home the place I’ve been dwelling in Ankara since 1990. Could Allah have gracious mercy. Since my daughter was raised as an aged care specialist, I, my husband and daughter helped one another and served our elders. Our largest hassle was to prescribe remedy and take the affected person to the physician.
04.05.2019 – AYÇİL SALİK – The well being system has collapsed. They arrive for House Well being Care, they do nothing however blood assortment. I discovered within the hospital emergency that my mom had meals in her lungs by probability. The hospital was admitted and the physician discharged earlier than the lungs had been cleaned. After we bought dwelling, my mom bought sick once more. I went to a different hospital however they didn’t settle for it. I needed to go to the identical hospital once more. They put them within the emergency. They seemed for 3 days however didn’t take it to the service. I needed to take my affected person to Istanbul.
22.05.2019 – DERYA KAYA – The largest want of sufferers is complete dwelling care providers. What I imply by complete dwelling care providers is that it doesn’t correspond to the present system in our nation. Every day or weekly dwelling visits are made by the healthcare workforce in response to the necessity, the care and remedy wants of the affected person are met at dwelling (at the very least these that may be performed within the dwelling surroundings), reviews, prescriptions and comparable paperwork are ready on the affected person’s dwelling, the bodily surroundings of the home is organized in response to the affected person’s wants (disabled bathroom, door I’m speaking a few system the place the affected person and his household can attain for assist 7/24 once they have an issue. As well as, it’s a massive drawback that nursing houses the place symptomatic remedy or care will be carried out for sufferers whose remedy has been accomplished however who can not (can not discover) therapeutic (most cancers, stroke, terminal interval sufferers, and the like) will not be obtainable in our nation. Sufferers who’re within the terminal interval or who can not deal with their ache can not discover a place in clinics and are left to their destiny, and the affected person household and the affected person should battle with the dying course of alone.
09.06.2019 – ALİ ERDEM – Good day. As a result of ICD codes had been fallacious, I wrote a prescription twice and renewed the report. How will I do know if the brand new report has been ready? In response to him, I’ve to get a prescription.
22.06.2019 – BAYRAM MELON – Good day. Our affected person is weak. He’s not consuming his personal meals. We tie a material underneath it. His eyes do not see a lot.
15.07.2019 – FATİH UÇURAN – Individuals are slightly hesitant to inform about their diseases. They assume as if the opposite individual is saying one thing. There’s additionally a scenario like being ashamed of docs. There’s a concern that my sickness shall be heard.
23.08.2019 – HASAN SEYİT ABDULLAH – To start with, have a superb day. Thanks for the knowledge you might have offered. What sufferers typically have hassle with is that laws is continually altering. The rationale for this occurring could also be that folks misuse the affected person care scenario. Steady change makes different sufferers and their family members aggrieved. The largest drawback is that the affected person who leaves the intensive care unit whereas linked to the ventilator has to return to the hospital to get a report.
25.08.2019 – ALİ ÜLVİ BÜKRÜOĞLU – Good day. We’re the world chief on this sector with 3 revolutionary and high-tech patented aged care help machines. I utterly agree along with your opinion that there are a lot of errors and inadequate on this sector in our nation. Metropolis hospitals are an awesome mission, however should you can not present the standard within the service half, this excellent mission will lose its status immediately. As a way to be one click on larger than the examples on the planet, we have to add the advantageous providers we’ve got to this excellent mission. Crucial service that ought to be given to sufferers hospitalized in intensive care or their rooms is to supply bathtub service with scorching water with ozone with out being faraway from their beds. The danger of an infection is zero as a result of ozone water is used, and due to the cell regenerating function of ozone, open wounds are closed rapidly, if there are bedsores, they heal rapidly and the formation of bedsores is prevented. Nevertheless, by establishing pleasant relations with undocumented counterfeit machines out there, municipal tenders are entered into and sadly, these machines are allowed for use in a manner that harms customers by violating patents. There isn’t any ministry that oversees these municipal tenders. The machines used within the service don’t even have paperwork. Since they don’t use ozone, sufferers are taken to a shower with the identical inflatable bathtub or comparable closed reservoirs and set off the danger of infecting one another. Crucial drawback I want to draw consideration to is the shortage of supervision within the service procurement of House Well being Companies in municipal tenders. In reality, there are a lot of issues and errors to clarify. I can not point out all of them right here. House Well being Companies tenders are given to firms that aren’t associated to this service. The worth given to the nation ought to be forward of friendship and cash relations. Though the House Well being Companies tenders embrace separate topics in municipal tenders, they’ll use totally different topics collectively in a single tender in order that they are often delivered to the tackle. What would possibly the ambulance firm should do with the self-care service or dwelling cleansing service? All of those providers are given to the identical firm with a single tender. This act is to underestimate this service and make enjoyable of the nation, it’s immoral. To ensure that our docs to stick with the affected person for a very long time, the surroundings shouldn’t be disturbing. Nevertheless, sufferers scent dangerous due to the medication they use and since they can’t be washed for a very long time, and this results in a shortened go to time as a consequence of dangerous ambient odor. Self-care is a vital service. In our nation, this service ought to be offered in a significantly better high quality and in a managed method. It could even be thought of to be given to a restricted variety of firms. By giving examples of the issues I’ve encountered on this sector, I’ve shared my experiences with you with a view to make sure that the issues of this essential service will be recognized at first and our individuals will be offered with out harming them. Respect and love.
11.09.2019 – ABDULLAH KAYA – Greetings. Since our affected person can not converse when he’s unwell, we have no idea what path to comply with. We can not talk. He can not converse as a result of he has a tracheostomy. This example makes us very unhappy. When we have to go to the emergency division, 112 ambulances are taken to not the hospital the place the affected person is adopted, however to the closest hospital. Now we have to retell the entire story of the affected person every time. We can not present correct data with that pleasure. Issues we forgot occur. Because of this, we’ve got to rearrange a non-public ambulance and go to the hospital. We’re returning dwelling by non-public ambulance. We expertise these issues at each examine. How can we go, after we go, which polyclinic we go to, we all the time have hassle.
13.10.2019 – MEHMET GÜLMEZ – There’s bleeding within the nostril of the affected person who makes use of an oxygen system. I couldn’t discover a answer. I’m very sorry.
04.11.2019 – GÜRKAN BARAN – My mom is 89 years outdated. Alzheimer’s and dementia affected person for 3 years. I’m taking care of my mom alone. Our monetary scenario is sweet. Could Allah give comfort to these whose monetary scenario is just not good. I’ve to do a number of totally different cares for my affected person. First, I alter the diaper (a few of that are offered by the state), then I do skincare, and I additionally do the care included in these processes. Pores and skin illnesses beneath the waist, hips and groin. These are brought on by urinary incontinence. Within the waist-up care, I exploit dermatological lotions towards drying and shedding of the pores and skin. I exploit drugs to forestall germs in your eyes. I do the hair care with shampoos that don’t comprise alcohol and sulfate. I exploit physique moisturizers. I prepare dinner primarily greens. I particularly choose stews and soup extra. At this age, sufferers can not transfer a lot and get drained rapidly. Care is required to forestall constipation. Crucial subject is hygiene merchandise. The state should meet these merchandise. For instance, it’s best to pay for merchandise corresponding to cleansing cloths, masks, gloves and medical shampoo. Additionally, on the finish of the report, the physician needs to see the affected person. There are those that are bedridden, there are those that can not stroll. The physician ought to come dwelling and examine. These are the most important challenges. Could Allah make it simple for everybody.
18.11.2019 – FATMA YILMAZ – There’s House Well being Service, however there are some issues with it. For the evaluation, the affected person’s attendant ought to go to the physician and get the evaluation printed. The workforce solely takes blood, once more you need to take the tubes to the related place in a restricted time and comply with the outcomes. The one factor performed is to provide blood assortment service. Though they’ve a automotive, they don’t take it. It’s important to run the tubes and take them your self. In the meantime, you need to discover somebody along with your affected person. The house well being unit takes the affected person to the hospital, properly, however when he returns, he leaves you on the condominium entrance. For instance, we had been left on the entrance at 2 am whereas it was snowing. Periodic management is just not performed. Possibly we’re doing one thing fallacious with the affected person or we don’t perceive the affected person’s misery. As a result of the family members of the sufferers additionally want help. The diaper help is inadequate, you need to pay virtually half of it your self. Merchandise corresponding to cleansing supplies and moist towels also needs to be paid for the lavatory wants of the affected person. The sick mattress gave the establishment, however there ought to be a eating desk in order that there isn’t any issue feeding the affected person. Thanks.
23.12.2019 – GÜLDANE ERSOY – As a 97% disabled muscle affected person, I wish to be examined and handled at my dwelling for ailments that the household physician could intervene. It is a large want for sufferers like us. Whereas we could also be handled with a serum and some medicines, we even have the distress of discovering a automotive to go to the hospital by ambulance and return. As a result of the ambulance doesn’t deliver it again even when we’re bedridden. Thus far, solely as soon as, with my mom’s plea, my household physician got here dwelling and seemed over and prescribed drugs. He did not even study it. As a 97% disabled muscle affected person, having to go to the hospital each time I’ve a affected person is extraordinarily tiring for me. Ambulance service solely till you get to the hospital. After the prognosis and the primary remedy, a bedridden affected person is left to return dwelling. The return of sufferers like us ought to be performed by an ambulance, and the variety of ambulances ought to be elevated if obligatory. Whereas affected by incapacity and plus sickness, we develop into extra depressing to have the ability to return dwelling.
23.02.2020 – MİNE MÜGE İLTAŞ – I’ve motor neuron illness and can’t stroll. A expertise referred to as exoskeleton has been developed. I have no idea how we’ll get this product to Turkey.
06.04.2020 – RECEP KARATAŞ – A catheter have to be inserted right into a prostate most cancers affected person. We can not take it to the hospital as a result of pandemic. They mentioned that the house well being unit would come, but it surely didn’t come. I would like them to return dwelling and assist.
13.04.2020 – NEZİHA KURT – My father is a most cancers affected person with metastases. I am taking care of him. We had been receiving chemotherapy in a non-public hospital. Chemotherapy is just not working anymore. His ache elevated so much. They really helpful us lutetium remedy. This remedy is on the market in sure locations. We took the drugs as soon as, then they referred to as us from the hospital and mentioned that their April and Could appointments had been canceled as a result of virus. Once I requested what to do, it was mentioned that we would not know. Am I going to sit down down and do nothing, slowly look forward to my father to die?
03.05.2020 – ARZUM ÖZERMAN – My mom is 96% disabled. As well as, she goes on dialysis 3 days per week. She fell a month in the past and her hip bone was damaged. Surgical procedure was not discovered appropriate. They took us out of the hospital to handle us at dwelling. I’m making an attempt very laborious to assist my mom in issues I’ve by no means recognized. With the help of the municipality, a transport ambulance is coming to return and go to dialysis for 3 days. The dialysis physician says my mom ought to have gallbladder surgical procedure. When he was hospitalized, docs mentioned that performing hip bone surgical procedure was dangerous. They said that they might not carry out a surgical procedure as a result of excessive ranges of irritation and the historical past of polio. I have no idea what to do. When leaving the hospital, they really helpful an injection that ought to be performed day by day to forestall embolism. They gave his prescription however didn’t report. There are 1 needles in 10 field. Every field is 200 TL. Since there isn’t any report, we cowl it ourselves. They didn’t report for the diaper both. We additionally cowl the material cash ourselves. As a way to get a brand new report, I’ve to name a non-public ambulance and take my mom to the hospital on a stretcher. It is a very painful scenario. I additionally have no idea which division I’ll go to within the hospital. I even have an aged father with dementia to take care of. Could God assist everybody.
25.05.2020 – LEVENT GÜNEY – I’ve a mom with a slipped disc in her waist. Three disks are lacking. He has had hassle strolling for years as a result of his spinal wire is compressed. As docs say, strolling distance is lowering day-to-day. She is 88 years outdated now. He can hardly go to the sink to fulfill his wants. He can not climb the steps. I purchased a wheelchair to maneuver round in flat locations. Nevertheless, we’re having issues as a result of we can not climb stairs. I’ve examined the instruments made by your organization and different organizations on this topic. Nevertheless, the worth got here to me too. These instruments have to be offered by the state.
04.06.2020 – ERDEM ARTUL – Medical merchandise are very costly. Please be a voice for us and attain out to the mandatory authorities.
22.06.2020 – CEMİL TURHAN – Have a pleasant day. I’m 90% disabled spinal wire paralysis as a consequence of harm. The place and the way can I discover any brochure about dwelling care? I can not discover a useful resource that features every kind of wants, together with cleansing, vitamin and comparable data.
23.06.2020 – URAL DEMİR – My 86 yr outdated mom is bedridden for 3 years. Now we have to rotate it left and proper with the sheet to do private cleansing and care of mattress sores, however we won’t, it hurts throughout me and says do not contact me. What can I do on this case, what sort of painkiller can I exploit? Are there medical merchandise for affected person cleaning and mattress sores?
24.06.2020 – SERPİL ÖZTULUNÇ – I’ve a bedridden father on the age of 85. He had a bypass surgical procedure. There are power diabetes, dementia and blood stress ailments. Lastly, his hip was damaged and we had prosthetic surgical procedure. He continues his life as bedridden. She has been dwelling utterly depending on mattress for a yr. Their houses will not be theirs. They reside with my mom. My mom can be 75 years outdated. The one supply of revenue is my father’s minimal wage. I want to ask you, is that this a lot revenue sufficient for such a affected person? We have no idea methods to proceed with getting care allowance. I utilized for guardianship. I am ready for the court docket.
29.06.2020 – FARUK KALAY – I’ve a father with a proper hip fracture. He had open coronary heart surgical procedure 10 years in the past. He makes use of insulin and coronary heart medicines. About 3 months in the past, he bought the flu and misplaced himself. He was taken to the hospital by ambulance. He was hospitalized within the an infection division. They had been discharged earlier than full restoration, extra exactly saying that is from us, in response to the feedback of the docs. He’s at present bedridden at dwelling. We use the probe and the diaper. He had hassle strolling for years. Now he cannot even sit on the mattress, not to mention stroll. My mom meets all of her wants and is struggling. As a result of my mom can be sick and outdated. In response to the docs, the angiography couldn’t be carried out once more as a result of the vessels had been blocked and so they had been advised that it ought to be managed on this manner. It was said that he could be hospitalized on this manner on occasion. She is 82 years outdated now. It has issue assembly its wants. He additionally suffers from dementia. He can not climb the steps. The leg muscle mass additionally just about melted. We’re having lots of issue in its upkeep.
06.07.2020 – NACİYE DEMİRCİOĞLU – Now we have a diabetic affected person. Proper facet paralyzed. He speaks however what he mentioned is just not understood. He has wounds on his proper foot as a consequence of diabetes. Blood values are always falling, the explanation was not discovered. A check-up monthly is really helpful. A stent was positioned within the carotid artery 1 yr in the past. One month in the past, angiography occurred in the precise leg. He’s now bedridden.
29.08.2020 – BİLGE ESENGİN – I reside in Ankara. I am on their own. My mom is bedridden and in want of care. I’ve hassle with most issues. The state doesn’t pay a babysitter charge simply because we’re paid. Is it a criminal offense to work and be paid? The caregiver is asking for some huge cash and we can not afford it with our wage. Each the affected person and our family members develop into victims. Why does the state not pay care allowance to individuals with a incapacity report and in want of care? At the very least the caregiver allocate it. Allow us to give this chance to us. Additionally, incapacity reviews have to be indefinite. This individual is sick with a report. The report has expired. They need the ill-minded bedridden affected person in entrance of them like a plot model for the brand new report. New report operations ought to be performed in response to outdated data. Or you may get data from SGK. The truth that our sufferers go to get reviews repeatedly by dragging scorching or chilly between the blankets each spoils their psychology and causes them to develop into extra unwell by being battered.
25.09.2020 – KEMAL ELBEYİ – I’m 83 p.c disabled. On the identical time, I’ve power diabetes, blood stress and coronary heart illness. Neurological ailments have additionally began. Sores seem underneath my ft. The worst factor is I am alone. It’s painful to go to the hospital. I can not stroll. I do not know the way or the place to get many issues performed. Thanks.
28.09.2020 – ATİLA ÖZİŞ – You may get assist when you have a relative with conscience or in case you are wealthy. In any other case, no person is taken care of correctly.
05.10.2020 – FATİH BİLGİN – My pricey father has been affected by COPD for greater than two years. We went by means of very heavy processes. Our life has all the time been in intensive look after practically a yr. As a result of pandemic, we spent most of this time not seeing him. I am positive you are feeling deserted. We had very brief intervals of palliative service and staying at dwelling. He had to enter intensive care time and again. Intensive care processes could remove pressing issues, however put sufferers in extreme conditions when it comes to extreme weight reduction, vascular injury and mattress sores, which places sufferers within the dying course of. Consequently, a tracheostomy was carried out for the final three to 4 months and he was despatched dwelling with a brand new system, after staying within the palliative ward for two weeks. The palliative course of was sadly very tough for us and the affected person as a consequence of fallacious practices and healthcare journeys. As a result of occupation of every of the sufferers’ family members, we needed to take turns with a gaggle of six companions. However the hospital employees did not need it and did not look after any of our causes. That is why the strain has occurred time and again. I attempted to clarify to them that these guidelines are obligatory, maybe as a result of pandemic, however that they don’t adjust to social circumstances and that it isn’t attainable for a single individual to spare all their time. Solely then we desperately encountered an thoughtless response corresponding to maintain a caregiver. We additionally bought harsher reactions due to these reactions. Subsequently, the training strategy of the family members was not enough. Solutions had been began to be given to the questions requested as a result of we had advised this to one thing or one thing. We had issues in transferring the coaching particulars to the opposite, as they didn’t decide up the newcomer earlier than the outdated attendant went to the hospital door in the course of the accompanying modifications. On the weekend, the ventilator system began to provide an alarm and low stress warning. The nurse I summoned aggressively saying that she didn’t perceive the system and that this coaching ought to have been given to us, as a substitute of discovering an answer. We tried to clarify that the system was caught in the course of the intensive care interval and that we left the intensive care unit and got here to the palliative service, and that we noticed the system right here for the primary time. We discovered that there isn’t any technical personnel within the hospital who understands these units. The service needed to be referred to as in case of emergency. It was mentioned that the docs ought to decide throughout working hours. As a result of it was the weekend, they mentioned that if the affected person bought sick, they’d instantly take intensive care. For this, they even opened a second vascular entry and waited prepared. It is a tragicomic scenario. Our affected person needed to be taken into intensive care once more simply due to the malfunction of the system on the primary day he was taken to the palliative service in one other hospital and it was once more on the weekend. It’s a massive fiasco that no nurses and docs don’t perceive these units offered by the insurance coverage, and that there’s not even one technician who is aware of these units in each hospital. Ultimately we went dwelling. The insurance coverage establishment may be very strict concerning the consumables of the units it provides and doesn’t cowl a few of them. As a result of it provides very low numbers to medical professionals, excessive variations are taken for these they meet. Affected person care at house is superficial. The workforce arrives solely doing routine work. No one is aware of concerning the units. There’s not sufficient helpful data and apply concerning the vitamin of the affected person. No different meals kind will be utilized aside from monolithic meals. It’s mentioned to get an appointment for the tracheostomy cannula. The affected person has no mobility. The meals cannula is excruciating. House care sufferers have dozens of issues, and the state must create a aware well being system with its social state id and affiliate these issues with the eyes of specialists and produce options.
12.10.2020 – HALİL KARAKUŞ – My father’s mind vessels are clogged. He was not capable of meet his bodily wants as a result of his mind had shrunk. Now we have to put on diapers on a regular basis. Due to the pandemic, we can not take it to the hospital and subject a report. Since Alzheimer’s illness progresses quicker than earlier than, he can not discover some issues. At the very least we’re ready for assist with diapers.
26.10.2020 – HACI ÖZ – Medical firms are the most important supporter of sufferers in want of care. Simply as drugs is just not offered in medicals, medical merchandise shouldn’t be offered in pharmacies, markets and comparable locations.
23.11.2020 – ESMA DEMİROĞLU – Good day. Well being staff got here dwelling the opposite day, however they left with out doing something. There’s a severe swelling and redness on my grandfather’s foot. It began to harm. Can not sleep as a consequence of ache. Their eyes don’t see 99 p.c. At all times bedridden. Which cream will we use with which drugs?
07.12.2020 – ERDAL DEMİR – I’ve a 82-year-old father who has strolling difficulties, coronary heart, lung and prostate ailments. We have no idea what sort of help we will get for dwelling care.
21.12.2020 – HAZAL AKTAŞ – My father has Alzheimer’s. Six will get dressed. The household physician writes a 2-month diaper. However each time he writes on diapers, he needs to see my dad, too. It is extremely tough to get my father out. The diaper report can be renewed yearly. Whereas updating the report, the physician needs to see the affected person once more. It’s a actual drawback to deliver it and take it with transportation autos.
12.01.2021 – ALİ KARAKAŞ – I’m a affected person relative. We can not profit from the well being providers offered by the state for our sufferers at dwelling.
25.01.2021 – BETÜL ÇAĞLAR – Affected person mattress is likely one of the most essential units for sufferers cared for at dwelling, however SGK doesn’t pay for this product. The affected person has to pay for no matter is required within the room the place he’s staying. Even should you solely pay for medicinal merchandise, it will likely be sufficient. Thus, sufferers are additionally comfy. In some houses, sufferers lie on the couch in the lounge. We additionally handle our grandmother at dwelling. He’s very overwhelmed as a result of he has COPD and needs us to be with him on a regular basis. For the reason that oxygen system given by SSI is an outdated mannequin, it makes lots of noise, all relations have to tug that sound all day lengthy. My brother needs to observe TV, whereas my grandmother’s system is working. My mother cannot deal with any of them as a result of she has a migraine. She can not even go to the subsequent room as a result of she needs my grandmother to stick with her as a result of she relies on my mom. My mom suffers from fixed complications. The stress in the home is on the highest stage. We all know that stress is on the prime of all ailments. An answer have to be discovered for this. We ask the establishments to supply help for the specifically produced affected person mattress that won’t trigger stress sores. At the very least our system ought to be changed with a brand new mannequin of oxygen concentrator. There are units that don’t make noise, that don’t work and disturb even whereas sleeping, however we can not afford it financially. Now we have to be content material with what the SGK provides. We actually want this. We count on help.
08.03.2021 – PELİN BÜYÜKYILMAZ – My grandfather is mendacity paralyzed. My grandmother is outdated and has a tough time caring for my grandfather. Since it’s within the village, we can not go to it simply. We have no idea how we will acquire diapers and comparable wants freed from cost. Our affected person has no report. How can we get it?